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Jun 4 •
🌹 Welcome to the ROSE Beyond the Numbers™ Healing Garden 🌹
I'm so glad you're here. Whether you're living with chronic kidney disease, on dialysis, a transplant recipient, a caregiver, or simply looking to better understand your health journey, you belong in this community. The Healing Garden was created to be a place of education, encouragement, support, and action. Here, we believe that while the numbers matter, they don't tell the whole story. 🌹 New Member Checklist ✅ Watch the Welcome Video ✅ Introduce Yourself Below ✅ Take the ROSE Score Quiz- www.rosebeyondthenumbers.com/quiz ✅ Explore the Community Resources The ROSE Score Quiz is a great place to begin because it helps you understand where you currently are in your journey across the four pillars of the ROSE Framework™: 🌹 Recognize 🌹 Optimize 🌹 Sustain 🌹 Execute We'd Love to Meet You Please introduce yourself below and share: 🌹 Your first name 🌹 Where you are in your kidney journey (CKD, dialysis, transplant, caregiver, etc.) 🌹 One thing you hope to learn, improve, or gain from this community 🌹 One positive thing you're celebrating today, no matter how small I'll start: Hi everyone! I'm Tamara, founder of ROSE Beyond the Numbers™. I was diagnosed with chronic kidney disease more than 20 years ago and received a kidney transplant in September 2025. My hope is to create a community where people feel informed, empowered, and supported as they navigate their health journey. Thank you for being here. 🌹 Remember: The Numbers Matter. So Do You.🌹
Pinned
Sep 16 •
ROSE Book Release
🌹 Tomorrow changes everything. For more than two decades, my life was measured by numbers. Creatinine. eGFR. Blood pressure. Lab results. Appointments. Medications. As an engineer, I trusted numbers. As a kidney patient, I learned they never tell the whole story. Tomorrow, I get to share the story behind those numbers. R.O.S.E. Beyond the Numbers™ is more than a book about chronic kidney disease or transplantation. It's about resilience, advocacy, leadership, faith, and learning that our lives are never defined by a diagnosis alone. This book represents years of living, learning, healing, and believing that our greatest challenges can become someone else's hope. Tomorrow, I officially become a published author with Book One of The R.O.S.E. Intelligence Series™, and I couldn't be more grateful for everyone who has prayed for me, encouraged me, challenged me, and believed in this vision. If you'd like to support this launch, please use the direct Amazon purchase link below, as it helps support my Amazon bestseller ranking. Thank you for walking this journey with me. 🌹 R.O.S.E. Beyond the Numbers™ Book One of The R.O.S.E. Intelligence Series™ 📖 Available September 16 #ROSEBeyondTheNumbers #TheROSEIntelligenceSeries #BookLaunch #KidneyTransplant #KidneyHealth #PatientAdvocacy #ChronicIllness #HealthEquity #WomenInST
Pinned
Sep 16 •
Today completes a full circle- Happy transplant anniversary🌹
One year ago today, this was me. In a hospital bed. Fresh out of transplant surgery. Surrounded by tubes, monitors, medication, prayers, and the people who loved me enough to stand in the room while my life changed. I had spent more than two decades living with chronic kidney disease. I had gone through dialysis. I had learned how quickly life can become defined by numbers — creatinine, eGFR, blood pressure, lab results, medication levels. But on September 16, 2025, I received something no number could fully measure: a second chance. And that second chance came through my sister. She gave me more than a kidney. She gave me time. She gave me possibility. She gave me the chance to keep building, keep loving, keep creating, and keep becoming. There will never be enough words to fully explain what that gift means to me. Today marks one year since my kidney transplant. And somehow, on this exact anniversary, I also get to release the book that tells the story behind so many of those numbers. R.O.S.E. Beyond the Numbers™ was born from this journey — from the fear, the faith, the advocacy, the survival, the rebuilding, and the realization that our lives are always bigger than the charts used to measure them. To my sister, my donor: thank you for giving me a part of you so I could keep living out the rest of me. To everyone who prayed, checked on me, supported me, and walked with me through every stage of this journey — thank you. Today, I am celebrating life. I am celebrating one year with my new kidney. And I am celebrating the release of R.O.S.E. Beyond the Numbers™. 🌹 One year transplanted. One story finally told. 📖 Available now. Amazon link in the first comment.
19d •
Hello
I’m 74 Sister, wife, mother and grandmother. I’m retired. I’m a micro dosing trizepatide user dosing 1.2 mg weekly. I’m at goal weight of 128lbs. Working at what maintenance will look like going forward. Do I stay at present dosage or go down. When I started on trizepatide I clearly didn’t understand dosage and transferring that to my syringe. Clearly not a medical person. I started at barely 3units thinking that was a beginning 2.5mg dose. That’s sounds hysterical to me now but it was what it was. Thing is I lost 13 lbs in the first 6 weeks. When I arrived back home from our winter in Florida a dear friend who is a retired RN called me. As I was sharing my experience with Triz with her and she wanted to get started. She pointed out to me my mistake. Silly me. I adjusted my dose to 0.5 mg for a month or so than 0.75mg and now today I’m taking 1.2mg. I’ve lost a total of 30lbs. My doctor says I’m a super responder. Here is my issue. I’m having low kidney function which puts me at CKD3b. I’ve been told I’m most likely dehydrated as I don’t have high blood pressure or diabetes. I’ve adjusted my fluids and of course my food. I love trizepatide for all the benefits from weight loss, heart, gut and kidneys. My kidney numbers have not improved that is discouraging and worrisome. So my question is where do I go from here? My standardized physicians don’t know much about all the exciting things I read about Triz and other peptides. I feel like I’m searching and researching on my own. I’m looking for help.
Aug 26 •
R.O.S.E. Beyond the Numbers™ Is Here
🌹 I didn’t feel sick. That was the problem. For years, I looked fine. I worked. I raised my family. I built a career. I showed up. Meanwhile, something was happening inside my body that I couldn’t see. That gap between what the numbers were saying and what I actually understood about them became one of the biggest lessons of my life. And eventually, it became R.O.S.E. Beyond the Numbers™. What still feels surreal is that before I’ve even really started the full launch campaign, this little book has already reached #1 Hot New Release in Organ Transplants and landed in the Top 10 Amazon Best Sellers in the category. 🥹🌹 But this community is about more than helping me sell a book. The book tells my story. What we’re building here is the place where we start talking about your story—your questions, your patterns, your appointments, your advocacy, your wins, and the things nobody quite prepared you for. So I want to ask you something: Was there ever a time when you “felt fine,” but your numbers—or your body—were telling a completely different story? Tell me below. I think this conversation is important. 🌹 R.O.S.E. Beyond the Numbers™ Recognize. Optimize. Sustain. Execute. Amazon preorder: https://a.co/d/0aYzIByV
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🌹 A kidney health community for CKD patients, transplant recipients, and living donors using the ROSE Framework™.
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