I just completed my first cycle and will be starting my second in ten days. I will be doing a CT and bone scan then in early November, so I'll let you know the results. I have mets to my spine and the lining of my right lung which has caused a sizable plural effusion. So far, my back feels better (ie less stiff), but my breathing is the same (I'm struggling to breathe when my heart rate goes up when playing sports).

@Kimberly Smith Kimberly, out of curiosity, can I ask about your thought process behind considering the chemo? If you have been NED for the past six months or so do you still feel the need to add in the chemo or what do you think? All our approaches are so individual aren't they! So based on preference and feasibility and access.

@Melissa Goodin Well I need to get rid of the bloody thing first I suppose! So right now I am doing full PP protocol with 6-diazo. If I could go back in time, I would do the surgery like I did but skipped the chemo and radiation. I would decline the hormone treatment but do keto for life and a three day fast onec a month, yes. That is where I fucked it I believe.

@Melissa Goodin I don't think you need to do HBOT if you don't have active cancer. I think a keto diet with a GKI under about 6 would be fine and take Vit D daily as well and eat nutritous foods, get 8 hours sleep, reistance train, some cardio, have fulfilling relationships with others and minimal stress in life.

And Den Stacey I guess!

@Nicté GKI Rivera I hope Pablo is okay actually. He had a surgery about two weeks ago to debulk his tumour and I haven't seen him on YouTube or Instagram since. Presume he is hopefully just recuperating.

Den told me to take it what ever way which will ensure my numbers are good getting in the hbot! Fine with an egg I imagine! How do you do that? Must try myself, is it just the husk powder and an egg and fry? I've been trying to eat it with water and it is not pretty!

@Miri Mo it's to stop/slow down side effects of don. Without taking it, you can get bad diarrhea and vomiting in the hours after taking don and the next day as the cells in your GI tract need glutamine to function properly.

We also have free healthcare in Ireland so even if you don't have health insurance, SOC is completely free. Well there are some hidden costs for private health care and public health care.... eg. a capped payment for your drugs every month (€86 I think) and then you have to pay the odd consultancy fee here and there. Stuff like that! Obvs lots of loss of earnings too from not being able to work cos of going to all the appointments/dealing with cancer symptoms/dealing with cancer side-effects