Bio: I’m Rachel O’Grady. I am 39 years old and a resident of Lyme CT. I am a Rare Disorder Warrior and a part time volunteer advocate for NORD.

Bio: I have nf1/nf2 fibro and chronic pain cervacalgia scoli and more

Bio: Disabled, Neurodivergent, Queer. They/Them. Interdisciplinary creative. Jack-of-All-Trades. Intersectionality belongs in everything!

Bio: Hi! I’m Susan, but you can call me Susie. I suffer from CRPS and PTSD. I know there have to be better ways to deal with them, so here I am!

Bio: Hi I'm Angi, I've been struggling with finding a diagnosis for over two decades. I'm a nurse and Mom, is give anything to be healthy.

Bio: Hello, I’m KJ. I’m 28 years old (they/them). I have an extensive mental health history and an even more complex physical history. Ask me anything !!

Bio: I am Amica, from South Africa. I have Hypothyroidism and Hyperhomocysteinaemia. I love to do research and love Schnauzers. I love to bake 🧁!

Bio: I am a wife and a mother to two wonderful kids. Ages 17 and 27. I myself have several chronic illnesses as does my daughter.